Journaling Journey

It is Friday night again and we are sitting here together as Kiddo does another week of IgG Infusions.

This is not the best way for her to spend her Friday night, as most college students her age are out having fun, but doing it tonight is proving to be so much better for her.

By doing this on Friday night she is able to go to bed and sleep off the side effects that she was was trying to work (literally through) before she changed to Friday night. She is also able to rest her body tomorrow as she struggles through the remaining side effects.

She is amazingly strong and courageous. Every time she does this, she amazes me at the strength she has to sit there and inject 4 separate needles into her legs and then sit there for an hour or more while she waits for the infusion to finish.

For all she battles with her body on a daily basis, it breaks my heart to watch her, but I also find a sense of pride to call her my daughter because I know she has dig deep down inside to do something that the rest of us take for granted every day.

Her road ahead looks a bit dark as we struggle to figure out what it is going to take to give her her life back, but thankfully after four long hard years of struggling already and battling for the fights we have won and battling the fights we have lost, we are closer now to finding this solution than she has ever been in the years back.

It is my prayer that the journey she is on with the new medicines and treatments that there will be an end to this battle she battles within her body. 

I was going to get ready to close until she just read me this amazingly fitting bible verse which I will share with you as well,

God is with her, she will not fall. Ps 46:5

God, you are amazing with your timing.

I was not going to write tonight as I often feel like what I write is not important and would not affect anyone else, but with closing with this verse and knowing Kiddo has no idea what I am doing, I know I was meant to write this tonight.

If you are battling a battle that is one you never dreamt you would battle, know you are not alone.

God has your back just as He has my daughter’s. He is with you, My Friend! 

Find peace and comfort in this tonight. 

Now I am going to close as I am sure Kiddos infusion should be close to being finished.

My friend, rest tonight. Allow God to take the burdens of the week away from you and sleep in the protection of His arms tonight.

4 thoughts on “The Battle of Courage”

  1. Thank you for this, it was so encouraging. I start my IgG infusions Monday. I’m so praying this makes difference and makes me feel better. Obviously I have low IgG levels, as well as mixed connective tissue disease, raynauds, celiacs, fibo, Hashimoto’s, asthma, and have struggled with 2 bacterial infections for the last year that just keep hanging on. Praying for your precious daughter. God bless you sweetie 🤗🙏🏻

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    1. Oh my gosh, you do not know how sweet it was for you to leave this sweet comment. I have to confess that your story makes me sincerely weepy because having watch my daughter struggle with her issues and not be able to get rid of infections, breaks my heart to see you struggle as well.

      Thank you however, for sharing with me as now it doesn’t seem like such a lonely road.

      Best of luck as you begin your journey. Together we will stand and know you are not alone. We are here with you as well. Stay in touch.

      Liked by 1 person

      1. You’re so sweet! It is nice to know you’re not alone isn’t it? Thank you and I appreciate your prayers! Will look forward to reading more from your blog. Take care, be blessed! Big hugs💗🤗

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        1. I was so touched by your words earlier that I read what you wrote to my daughter. She too felt bad for you, but was encouraged to know she isn’t alone as well.

          This being said she has one of her mega migraines today, but is trying to suck up the pain and still move in with her life. She needed to get some college work done this am, but she just needed to work with her meds to get some pain relief.

          This was so she could still get to work today because she is dedicated to her job.

          You both are truly special and God has a special purpose with your lives for all the pain you endure.

          Now I know you are struggling too, I am encouraged to write more about this journey she is on with the hopes you and others might be encouraged and strengthened.

          I have a link to my 2.0 blog on the right side tab of my page you are on. I am writing more on my 2.0 blog with the hopes to move farther in my blogging world. Be sure to check it out too if you haven’t.

          I am going to follow you as well. I am looking forward to reading about your journey and the encouragement you share with others.

          Thank you Sweet Lady for your kind words today. They truly touched my heart. 💜

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